Jesy Nelson Shares Heartwarming Video of Daughter Amid SMA Challenge
Jesy Nelson recently shared a heartwarming video of her daughter, Ocean Jade, laughing and cuddling with her grandmother. The touching moment was captured and posted on her Instagram stories, drawing attention from her fans. As a former member of Little Mix, Jesy’s life has been a mixture of joy and challenges, particularly since her twins’ diagnosis with Spinal Muscular Atrophy (SMA).
Heartwarming Moments Amid SMA Challenges
In the video, Ocean is seen giggling as Jesy’s mother showers her with affection. Jesy, 34, can be heard joyous in the background, expressing her happiness at this tender family moment. She also shared another clip, humorously highlighting her daughter’s growing hair, likening it to a “little mullet.”
Health Struggles and Awareness Campaign
Jesy has been candid about her twin daughters’ health situation. Both Ocean Jade and her sister, Story Monroe, were diagnosed with SMA Type 1, a rare genetic disorder affecting muscle strength and movement. This condition was discovered after Jesy’s mother noticed abnormalities in the twins’ movements.
| Condition | Description |
|---|---|
| Spinal Muscular Atrophy (SMA) | Affects approximately 1 in 10,000 newborns; causes severe muscle weakness. |
Jesy gave birth to her twins prematurely in May 2025 due to complications related to twin-to-twin transfusion syndrome. Since then, she has actively campaigned for the inclusion of SMA screening in standard newborn blood tests. Her petition has garnered over 100,000 signatures, emphasizing the urgency of early diagnosis for this life-limiting condition.
Shifting Focus to Milestones
Despite the ongoing health challenges, Jesy remains hopeful and celebrates each small victory in her children’s progress. She noted that her perspective has shifted significantly: “When I see them holding their heads up for five seconds, that’s my new milestone.”
While navigating this journey filled with hospital visits and uncertainties, Jesy continues to connect with her followers through social media. Fans commend her transparency and resilience, often calling her an “inspiration” for openly sharing her experiences. Through these moments, she aims to bring awareness to SMA and foster a supportive community.
